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Snowflakes: Shellie and Patricia’s Story

Hi everyone, these are two very special stories from two very special ladies in the Group.  I found something Shellie said to me so interesting that I had to put it up.  She said “people with Lupus are...

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My Story: Marie

Have you ever had a dream you’re in trouble and you’re screaming out for help but no one can hear you and no one comes to rescue you? That’s what the last two years have been like for me. My body is...

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Clare Recalls Lupus Heartbreak On Anniversary Of Her Sister’s Death

I am writing my story, not as a Lupus sufferer, but as a family member who had to watch my beloved sister lose her battle with Lupus and other illnesses.  One year ago today, at 8.30pm on 16th May...

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My Story: Marian

As a teenager I was always unwell. I was tormented with swollen glands, tonsillitis, severe kidney infections, fatigue and migraines. I look back at this time and shudder; it really was a terrible time...

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My Story: Anne Marie

When I was younger I was never that ill I used to get stomach cramps but nothing extra ordinary, so when I did begin to feel sick constantly I knew something wasn’t right.  I suppose it all began about...

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My Story: Anonymous

“It’s easy to forget and hard to remember”. This is what immediately came to mind when I sat down to write this story. You quickly forget what you’ve been through, not because you want to forget (well...

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My Story: Jessica (Smith)

My name is Jessica Smith and I have Systemic Lupus… I prefer to start it that way as opposed to being a ‘Lupus person’. For those of you that have never heard of Lupus, it can take a while to describe...

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My Story: Elaine (Griffin)

Why am I so Tired?? That’s the question I’ve been asking myself for so many years. “Does everyone have these aches and pains?”…. “I don’t want to complain. This must be normal”. Soon my Secret Admirer...

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My Story: Ciara

It was Christmas 1999 and I was 17 years old when I began to feel very unwell.  I was vomiting and I was so weak (my haemoglobin was at 2, normal range is 12) when I was eventually admitted to...

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My Story: Jessica (O’ Bryan)

  My Story: November 2011 I believe I have had Lupus for many years now. It may have started when I was travelling around Australia in 2006.  Whilst backpacking through the east coast I began to break...

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